The Unexpected Side Effects of Chemotherapy

The Unexpected Side Effects of Chemotherapy is sponsored by Vagisil.

My Breast Cancer diagnosis in November 2015 hit me like a bus. Out of the blue, totally unexpected. I had no symptoms. Well except for an uninvited lump in my left breast. I was only 37 years old.

I was awash with emotion and questions. Questions that no-one, at that point, had the answer to.

Am I going to die? Will I lose my breast?

Unexpected Side Effects of Chemotherapy - Love from Mim

As the days went on and I met with the people who would become my medical team, I got further clarity. I came to terms with my diagnosis and learned of the treatment plan that awaited me.

I would have a lumpectomy, followed by six months of Chemotherapy and three weeks of Radiation.

The thought of chemotherapy alone scared me senseless. Images of grey-faced, bald-headed, very sick individuals came to mind.

What on Earth was about to put myself through?

I mean, I wasn’t ill. Yes, I had Cancer. But I wasn’t ill. I had no symptoms, wasn’t tired or losing weight. I had no pain anywhere. Ok I was tired but I had a 6 month old baby!

Taking the advice of my medical team, I embarked on my chemo regime. First up was an “Education Session” where my partner and I learned of the potential side effects.

The obvious ones were discussed: hair loss (crap), nausea (also crap) and diarrhea (um, crap).

The list seemed endless, ranging from the possible to the probable and methods to cope with them all.

The Unexpected Side Effects of Chemotherapy

As the months passed, I ticked off the list, being hit hard by some and narrowly escaping others. The hair went but nausea was far more bearable that I anticipated.

There were some unexpected side effects in chemotherapy that I felt I was not prepared for. Unusual chemo side effects that I could have probably discovered were shared by my peers, if I delved deep enough into the Cancer fighting online forums. I’d chosen to stop that though, it was too confronting for me.

One thing to seriously bear in mind is that chemo affects everyone in different ways. Two individuals can be on the same regime for the same diagnosis and have a completely different journey. What effects one massively might not affect another in the slightest.

I didn’t know that before I started chemo. I thought one size fitted all.

There were two main unexpected side effects of chemotherapy for me.

The first was that very quickly, only a month or so in to my regime, I started to experience the symptoms of early menopause.

My periods stopped and with that, I felt like overnight, I aged 30 years. I started to experience some of the symptoms that I’d heard older women discussing about menopause.

Hot flashes, cold sweats, weight gain, difficulty sleeping, vaginal dryness, zero sex drive and hormone fluctuations to name but some. I was only 37 years old.

My medical team had constantly referred to me as a ‘young mum with cancer’. When I told people of my diagnosis they gasped about I was too young to be facing this battle. I had felt too young.

Until I looked in the mirror and the woman looking back no longer felt or looked young.

My skin grey, my eyes tired, my body drying up from the inside out.

The second unexpected side effect of chemotherapy I went through.

I’ll just call it “Chemo Brain”. It’s the term my beautiful circle of cancer-fighting warriors tends to use.

Chemo Brain, includes, but is not limited to, feeling anxious, overwhelmed, depressed, confused, blurry, foggy and forgetting every God damn thing anyone ever tells you.

It means forgetting what day it is, your friend’s birthdays, anything important that you had to remember and what exactly you went in for when you walked into the kitchen.

Twelve months on from finishing my chemotherapy course and Chemo Brain has not let up. For me, or my circle of friends.

It isn’t an excuse and it isn’t laziness. It’s a genuine and incredibly distressing side effect of chemotherapy that has changed my life hugely.

Pre-Chemo, my memory was as sharp as a knife. I was the most organised person I know and my friends and family will vouch for that.

These days I forget what I was saying halfway through most of my sentences. It takes me three weeks to reply to a text message that simply asks “How are you?”.

This is not me.

Finding ways to overcome my symptoms

All, I hope, is not lost. I’m finding that planning ahead and keeping a hand-written list of everything I need to do helps.

I write everything down from the minor to the major tasks. So far, that’s helping me get things done and feel confident and self-assured that I’m doing so.

Almost all of my physical symptoms have been resolved. I have battle wounds, physically and mentally, that will never go away.

My appearance is slowly returning to what it was. I’ve lost a little of the weight I gained, my hair is growing back. Slowly.

My periods returned four months after my last chemotherapy session and I’ve never been so pleased to greet Aunt Flo. She even had the good grace to space out her visits every couple of months but they’re since back to normal.

Never in my life did I think I would be sharing such personal issues with the world. When I first wrote about my Breast Cancer diagnosis, I promised to be honest.

I wanted my posts to be a source of comfort for others going through a diagnosis. Also for their friends and family to gain a greater understanding of what they might be going through.

My biggest piece of advice to anyone else going through this would be twofold.

Firstly, whilst at the time the side effects seem never-ending, many will fade away after chemo stops.

Secondly, don’t suffer in silence. So many of the side affects you might be experiencing can be helped. Talk to your Oncologist or your GP. Tell them what you’re going through and see what they can suggest to help.

Sometimes, just talking is all it takes.

An introduction to Vagisil

I’ve written this post to share the two unexpected side effects of Chemotherapy that I went through. With that, I want to share a product I found out about that will be of interest to other women experiencing some of the symptoms I did.

The Vagisil range is tailor-made to women who are experiencing vaginal dryness. Whether you’re undergoing chemo, going through menopause or just having this symptom because of hormonal changes.

Dr Nikki Goldstein shares more on what causes the symptoms and what can be done about them here:

Vagisil ProHydrate Gels are an easy to use, innovative solution for dryness – something that 19% of Aussie women experience each year.

If you want to get proactive about treating this issue and helping to improve your sex life, you can find out more on their website here.

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Unexpected Side Effects of Chemotherapy - Love from Mim

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4 Comments

  1. 18th May 2017 / 8:47 pm

    I am so hearing you Mim! I am building up the mindset to share my own cancer journey with the world soon.
    I struggle with memory issues daily too. My stream of conversation is always interrupted with vacancies these days. I resent the new me who is addled and flustered and unable to function in the most basic of ways.
    Thank god for the return of our fertility! Such a precious gift.
    Cancer is a massive journey and it will take a lifetime for is to comprehend it. I am so glad we have the connection together! Xx

    • 18th May 2017 / 9:08 pm

      I am too! It means so so much that you get what’s happening. Clearly I wish you didn’t know though, goes without saying :) Please do think about sharing because it has certainly helped me a lot in processing the change. Just writing it all down helps, you don’t always have to press Publish of course x x

  2. Adrienne HARRIES
    16th May 2017 / 6:23 pm

    i had mouth ulcers at the time and now years after chemo low iron levels – my doctor says low iron and chemo are not related – BUT i had nil issues with iron before chemo – but a good supplement helps

    • 16th May 2017 / 6:43 pm

      I had the mouth ulcers too – and such a sore throat. Ah yes you’re so right about supplements too – I’m adding better things into my diet and have started some new supplements recently too to help rebuild my immune system :) x

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